Tag Archives: MS

“You’ve Got This” Healthline Videos to Support MS Patients

Healthline just launched a video campaign for MS called “You’ve Got This” where individuals living with MS can record a short video to give hope and inspiration those recently diagnosed with MS.

You can visit the homepage and check out videos from the campaign here: http://www.healthline.com/health/multiple-sclerosis/youve-got-this

Healthline will be donating $10 for every submitted campaign to the National MS Society, so the more exposure the campaign gets, the more the videos Healthline will receive, and that is all the more Healthline can donate to MS research, support groups, treatment programs, and more.

Perhaps you could help spread the word about this by sharing the “You’ve Got This” information and link with friends and followers of your own blogs or include the campaign as a resource on your Facebook, Twitter, or other social media sites you use.

Thank you!

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Moving Your Body

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Having Multiple Sclerosis and/or Syringomyelia, I have found for myself, it is important to keep my body moving so my muscles stay strong. Hiking is one activity I have always enjoyed and still do. These days I don’t do very strenuous hikes due to the Syringomyelia, but certainly still enjoy longer trails with a low incline. My suggestion for a fantastic day trip for a nice hike for those in Southern California is to take a  boat ride out to the Channel Islands National Park to Santa Cruz Island.The morning ride out is usually foggy, but burns off quickly.

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There are many trails to explore for the day and two of them are low-impact with a very low to moderate incline. Very manageable for MS or Syringomyelia peeps. When you get to the top of most any exterior hike on Santa Cruz Island, you will be happy you made the trek.

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When Did Things Get So Crazy, Baby?

Remember when things were that simple? You could hop on the trike and hit the open road? The breeze blowing through your short, not-yet-grown-in-hair? Yea… neither do I, but it feels good to look at the photos and pretend to remember when that may have been. It couldn’t have been too long ago because at some point the hair grows in and we’re able to dress up that gorgeous wind-blown hair.

And then something goes awry and we need to call in our friends to back us up and open that can of Whoop-ass we’ve had tucked away for years. We never knew we had that can of Whoop-ass. We maybe thought it was a can of left-over PlayDoh or the Hanging Monkeys game. But evidently we all have Whoop-ass in some form or another. Mine comes in the form of strength. Health and fitness. People who workout. Keep their bodies strong.

Now, wait a minute. I said bodies. Not mind. And I realize he wears his name of his shirt. That’s for his benefit. Not yours or mine.

So I called in a few reinforcements when the going got tough recently. For the first time in my life I realized that in this world of crazy, I, the sane one may very well be one the edge of insanity. BUT luckily, I was pulled back from the edge of crazy and found out it was just Multiple Sclerosis. Whew. What a relief. My mind is not nuts. My world is nuts on occasion. My mind is fine. It is simply the added bonus of mind-meld from Multiple Sclerosis that is making it seem like the crazy is encroaching upon me when in fact is is not at all.

Multiple Sclerosis. Multiple Sclerosis. Let me say it a few times. I have Multiple Sclerosis. There. It’s out of my system. Well, not out of my system, but out of my system if you will. I’m not a sickie. Not a complainer. Not lazy. Not a bummer. So this diagnosis explains a lot for me and my close family.

Working in the health & fitness quasi-entertainment industry has helped me manage the Multiple Sclerosis symptoms over the last decade which is why I only recently received the diagnosis. People like ^^^^^^^ Mikey are the ones who inspire people like me to exercise everyday. Okay, four, maybe five days a week. The point is, working with the people I work with have made it very easy to keep Multiple Sclerosis manageable. I admit that I have been in a drunken stupor four the last month since I received the diagnosis and have let some things slide on the responsibility scale. However, it is the people like ^^^^^^ Mikey in my life who said, “Get up, girl. Move that body. Vegetarian – not good enough. Time to be a vegan. Move that body. Move. That. Body. or Lose. That. Body.”

So here I am one month later and six doctor visits in, more testing to go due to an unexpected spinal cord issue that was found as well, but the MS symptoms are going to be manageable, I believe wholeheartedly, due to a healthy diet, consistent exercise, and the strength of the people in my life who make me strong.

My baby, who happens to be taller than I, is the first one to say get that Yoga mat out and let’s stretch it out while we watch Pretty Little Liars and the Mentalist. She rocks, people. She will rock MS right out of you too if you let her. My tall baby is the first person to help me out of a chair on the days my body can’t do it alone. She is the first person to grab swimsuits for the gym swim. She is a-w-e-s-o-m-e. And sane.

My lovey, who happens to have more longevity on this planet that I, is the first one to say let’s eat it raw, vegan! He is the best vegan cook on the planet. He is a shopper, chopper, chef, experimenter, supporter of anything new, he is truly amazing. He is so supportive. He is always looking for new ways to cook food, find new things to reduce inflammation in the body, try new recipes, and he eats whatever I try to prepare. That in and of itself is a sacrifice. He always says it was delicious. He is wonderful. And borderline sane, but not, but maybe he is.

So I’m opening a can of Whoop-ass on the Multiple Sclerosis.