It has been quite sometime since I have made any updates. The year was crazy. Lost my home in a flood, moved my mom who has Stage 6 Alzheimer’s into a terrific, safe memory care, and have been recouping and playing catch up since last summer. That’s my mom there in the photo.
Joint pain has gnawed at me off and on for a couple years and has gotten much worse in the past few months. My hips are so painful that on a handful of occasions I cannot move my legs to walk. My range of motion is non-existent. The joints in my elbows and inner knees are in constant pain to the point where nothing can touch them, not even a soft pillow or my mattress. When the hip and elbow pain began to happen more frequently I thought I was having a flare-up. My neurologist thinks it is osteoarthritis and not M.S.-type or Syringomyelia flare-ups. He doesn’t think osteoarthritis is related to the Syringomyelia, but I swear I read a few interesting articles recently that noted the two issues have been seen in patients with a Syrinx. If I go back to find them, I will link here.
I have an appointment with a rheumatologist in the middle of August. For the last year I have been taking an all in one supplement: Chondroiton, Glucosamine, and MSM to alleviate the terrible joint pain. It may work for some of you, my fellow special spinal cord folks, but it has not worked for me. If anything, it has eased the crepitus a tad bit. Regarding pain, the supplement has not done anything. Time to make a change.
My neurologist mentioned Collagen Hydrolysate as having positive results for osteoarthritis pain, especially in the hips and elbows. So I’ve spent about 20 hours reading whatever I could find on the Internet and reading testimonials (and some negative comments) from current users of the supplement. Supposedly, Collagen Hydrolysate slows down the loss of cartilage, reduces pain, and gives you more mobility. I have ordered some for myself from the Great Lakes Gelatin company. www.GreatLakesGelatin.com
This could be a long shot, and I realize that 20 hours of reading stuff on the Inter-webs isn’t the magic ticket, however I am quite hopeful that this product will work. A few athletes who I work with did have positive, personal experiences using it. As always, I will let the new rheumatologist know I’m taking it and I am eager to hear his opinion. My order should arrive by Friday. I’ll update as soon as I notice any changes.
in the meantime, here are some random pics of the last few months.
Christmas in Montana, the Rose Parade, beach days, hanging with Tito Ortiz at my health and fitness expo, Mother’s Day, crazy sun in San Diego, and other fun shenanigans. Thank you for reading!
There is nothing better than a paddling on the ocean. Kayaking is enjoyable for so many reasons. When I paddle out a couple of miles into the ocean I feel so free. Removed from all the things that tend to bog me down during the week. It’s all very mundane stuff during the week, but still enough to make one feel overwhelmed at times. So kayaking is my time to relax.
On my Saturday paddle in Cabrillo Beach of south Los Angeles, I saw sea lions, a harbor seal, dolphin, pelicans, marbled godwits, gannets, and albatross. Not to mention numerous fish swimming through the gorgeous kelp beds. The scenery is gorgeous. The cliffs are stunning, the old Fermin Lighthouse is visible from the water as you go around Fermin Point.
Paddling is an excellent workout. Sometimes I paddle hard and feel the burn in my shoulders and forearms. Other times I paddle in a more gentle, slower rhythm and just cruise around the ocean. Kayaking feels so good because while I use my arms with gusto, my legs can just rest in the kayak for the day. If I could live on the water, I would!!
Whew. I have missed two seasons. For the last four months, I was working on putting together a health and fitness expo. I have had only one flare-up that lasted about eight weeks. Other than the normal deep spinal cord pain and muscle weakness, I have felt fantastic.
My spinal cord hurts deep inside with a sunburn feeling from the base of my skull to my lumbar spine. That is from the syrinx. It has been a constant pain for months. Possibly because I haven’t been swimming. Or using my Stairmaster regularly. BOOOO me! It was a birthday gift and aside from swimming and lifting (light) weights, the Stairmaster is my favorite exercise. Lifting weights is supposedly a no-no with the Syringomyelia. However, it is good for M.S. and other diseases in that family. Besides, it burns fat and keeps the skeleton and muscles in excellent shape. And after a few months of working and not taking care of myself… I need to get rid of some fat. Oh-my!
Between working my show and having some days of rest here and there, I did find time to enjoy this Southern California fall and winter weather.
That just about wraps up the busy year. I hope 2013 is a great year for everyone filled with an abundant amount of good health and joy. Get up and keep moving. Stay strong. Move that body or lose that body.
I have been nominated for the One Lovely Blog Award! Thank you to Fae, FaesTwistandTango.wordpress.com, for nominating me. I love to read Fae’s blog and you probably will too.
To receive this award, the blogger must share the following with their readers:
- Thank the person who honored them with this award and post their links;
- Nominate 15 other blogs for this honor; and
- Tell readers seven things about themselves.
SEVEN THINGS ABOUT ME!
1. When I was a teenager and into college, I worked on the soap opera Days of Our Lives. My job started out as Writer’s Assistant and after many years transitioned into production staff. It was a fun job, but I quit to move to Denver, Colorado… to follow a boy.
2. Cher used to babysit me and my sister when we were little girls so my parents could go on “date night.” One evening Cher brought over her new Cher Doll which was like a Barbie. My sister split the legs of my doll until one broke off. Cher gave me a new one at the studio a few days later. I’m now missing the new doll, but recently found the original broken leg. Yes, I have apparently had the broken gam for 40 years, but I am not a pack-rat.
3. I collect decorative eggs and trinket boxes. When I have a little treasure and don’t know where to put it, I stash it in one of the gazillion trinket boxes I have. One lady’s junk is another lady’s treasure.
4. The smell and feel of books is comforting. I am an avid book collector and refuse to transition to an e-reader.
5. Antiques Roadshow was in Denver one year. I took an old, hand-decorated trinket box to have it appraised. It came from India from my mom’s aunt who worked for the State Department in the 1940s until the early 1970s. I was so sure it was going to have a high dollar value. This little box is just a gorgeous, fabulous piece of history. Or so I thought. The appraiser said, “Hello dear. This is certainly beautiful. However, some things carry a sentimental value. This is a hand-made, decoupage box from the U.S. It is worth plenty in your heart.” WHAT!!?? I waited five hours in line to find out my grandma’s friend had made the box in a craft class back in Ohio in 1955. Shhhh, don’t tell. Everyone else thinks it’s worth a mint!
6. I took the MENSA test once. About 20 years ago. Passed. Received my membership card. Oddly, it expired. So I took the test again recently and I failed. No card arrived in the mail. I thought we got smarter with age. What does that mean exactly?
7. My mantra is LIFE IS SHORT. LIVE IT AND LOVE IT. The age of Earth is approximately 4.5 billion years. I maybe have 80-100 good years of life which translates to less than a microsecond compared to the age of Earth. Most of my time is spent only doing things I enjoy. My dad died young. In his lengthy illness he instilled in me some strong belief that whilst we need to be responsible humans, we need to live our short lives to the fullest enjoyment possible because you never know what tomorrow brings. He encouraged me to let my soul, let my heart, guide me. Connection to the Mother Earth will be strengthened. In the end, that is what will make me rest peacefully. That was ten years ago and that is exactly how I live today and I always have a good day.
Here are my nominations for the One Lovely Blog Award,
Adventures in Life, Health & Fitness http://4mylifefitness.wordpress.com/
The Berlin Lunchbox http://berlinlunchbox.wordpress.com/
Maggie’s One Butt Kitchen http://maggiesonebuttkitchen.wordpress.com/about/
The Occasional Traveller http://theoccasionaltraveller.com/where-i-have-been/
The Best Travel Photos http://besttravelphotos.wordpress.com/
The Vegan Weight Watcher http://theveganweightwatcher.wordpress.com/
Wayward Traveller http://waywardtraveller.com/
My Funny Eye http://myfunnyeye.blogspot.com/
The Snot Rocket http://drevets.com/the-snot-rocket/
KC Leighton http://kcleighton.com/
A Little Yoga, A Little Health, A Lotta Love http://alittleyoga.wordpress.com/
Daily Cup of Yoga http://dailycupofyoga.com/
Best Hikes http://besthike.wordpress.com/
California Canoe and Kayak http://calkayak.wordpress.com/
Joe Round Britain http://joeroundbritain.wordpress.com/
Channel Islands Outfitters http://channelislandsoutfitters.wordpress.com/
LOVE THEM ALL!
I really need to learn how to focus on the task at hand. Lately I have become so forgetful! Kept forgetting to grab my camera. Example: Recently I wrapped up aexpo I have been working on out of town. I spent six months planning for one weekend of all things health and fitness related. Organized, interactive demonstrations, contests, and exhibitors came under one roof to share their knowledge, expertise, and goods. Exercise knowledge, healthy eating and cooking demos, and Jiu Jitsu tournaments, Strongman competitions (think MET-Rx’s events), meditation information, vitamin companies, equipment and clothing companies, different branches of the military came out to demonstrate using your own body as your own gym, aerobics classes, we had all kinds of cool stuff. And the only photos I had time and remembered to take were of the city from my hotel room, and a crowd shot of making a surprise visit to the show at his clothing line’s booth. (And you can’t even see him in the photo.)
So, is it the MS medication making me suddenly forgetful?
Or is it me just not remembering to do things, like take photos of my own event? Bummer. It was a cool weekend.
For the first time in a couple of years I was able to sit in a theatre without leg spasms, random kicking, or freakish body movements. Is this actually due to Gabapentin? Nobody around me was bothered. It was incredible. I had such a wonderful time. I LOVE GABAPENTIN. DISREGARD ANYTHING I SAID EARLIER ABOUT NOT LIKING IT!
About this musical I saw this evening… Million Dollar Quartet at the Pantages Theatre. It was fabulous. An incredible show with a superb cast.
“Million Dollar Quartet” is the name given to the impromptu recordings made by Johnny Cash, Elvis Presley, Jerry Lee Lewis, and Carl Perkins on Tuesday, December 4, 1956 in the Sun Records studio in Memphis Tennessee.
The history of the humble beginnings of these four careers is extremely interesting. Not to mention the fascinating details offered about Sam Phillips, the man who gave them all an ear and an incredible start to amazing careers.
Hopefully it will be in a city near you soon!